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mizzchelle87 23.11.2017 00:29

Hey everyone! My name is Lauren and as I mentioned in the subject, I’m new here. Since November 2, 2016 I’ve been dealing idiopathic hives on a daily basis which eventually caused me to withdraw from the world I once knew. I haven’t gotten an official diagnosis because my insurance won’t cover testing, only office visits and preventative care.

mizzchelle87 23.11.2017 00:29


mizzchelle87 23.11.2017 00:30

I see other people are having similar issues and have had success with self home-management. I was hoping to network and learn about what has worked for people. This past year has been isolating and people who don’t experience this can’t seem to get why it’s such a “big deal”.

Thought I would just try and reach out here.

featherstone 08.03.2018 00:08

Hello Everyone. I am on here in case I can help somebody with my story. This will be short. I have had CIU since around 2014. I looked back on my calendar to see when I began to go in to see a doctor. I have been to four doctors over the years. Those of you who suffer know how many creams and other medicines you try. At one time they had me on Cellcept - the stuff they give to patients with organ transplants. The hives/dermatitis got worse and I took myself off of it. The skin on my arms were bruising all the time. If I rubbed up against something hard, by skin would literally peel-off and bleed. I have scars all over my arms. The skin below my fingernails would get chapped and inflamed. I could go on. Nothing worked. Triamcinolone cream helped the most. I would spread it all over me every day. Still these itchy bumps would come; forming mostly on arms, lower legs and back. It took me forever to get ready in the morning. I suspected inflammation, so began drinking high PH water; using high PH soap. Last week I noticed that the bumps weren't as bad. Coincidentally, a nutritionist friend of mine found out that I loved to drink milk. She suggested I go a week without milk. I didn't want to do that, but I told her I might try it, since I had already gone two days without milk and I had noticed no bumps forming. Thinking and hoping that I had stumbled upon a possible cause, I continued to 'fast' from milk. It's been over a week now since I've had milk and the bumps have stopped forming, and the skin eruptions on the end of my fingers (and eruptions on my face as well) have not returned. Since I have never had any digestive issues, I figured that the milk was not the cause of my problem It obviously was, and I would have never suspected it. I'll GLADLY not drink it now! I'm drinking delicious almond milk and doing just fine with that. I am so happy to be free from this prison. I hope this helps somebody out there! Please contact me at Enable JavaScript to view protected content. if you have any questions.

prettybutton 08.05.2018 13:22

Hi All I am new to Urticaria. I had surgery last October and since then I have had this unbearable itch all over my body. I have been to my GP 1000 times and eventually to a dermatologist who diagnosed me. I am on a lot of antihistamines and Betnovate steriod cream for the last 4 months but it is still st its worse. Any recommendations for diet etc.

alese 22.10.2019 11:16

Hi @pretyybutton. There is a list of foods that's high in histamine that needs to be avoided by those who suffer from csu /ciu. Type into google "list of high - histamine foods". I tried it for myself but it didnt work. There is a small percentage of people with csu /ciu who it doea affect

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